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Data are essential to inform public health activities. While an abundance of data are collected and used in different sectors, laws define how data can be used to promote health of individuals and communities.
This checklist provides a list of questions that public health authorities should consider prior to initiating new Act;ivities involving data collection, access, and sharing.
This online toolkit provides information on sharing behavioral health information under California and federal laws with the goal of assisting the integration of behavioral and physical health information for more comprehensive patient care.
This resource for clinicians and clinical laboratories contains information and sample broad consent agreements (in several languages) for using identifiable genetic and health information in future research.
This slide deck provides an overview of legal issues associated with cloud computing and provides considerations for negotiating contrAct; terms with cloud computing providers.
This document provides a side-by-side comparison of the FERPA and HIPAA privacy protections to facilitate sharing between schools and health agencies.
This online resource provides a brief overview of the importance of data use agreements and contrAct;s in obtaining and using administrative data, and it contains links to sector-specific resources and example agreements.
Legal Issues Concerning Identifiable Health Data Sharing Between State/ Local Public Health Authorities And Tribal Epidemiology Centers In Selected U.S. Jurisdictions
This resource provides a general overview of the legal authority of state, local and tribal public health agencies to collect, use, and share data for public health and research purposes.
This document discusses legal issues relating data sharing between health care providers and public health agencies.
Measuring Performance: A Guidance Document for Promise Neighborhoods on Collecting Data and Reporting Results
This resource provides a process for Promise Neighborhood grantees to establish data systems and processes to collect and report data required by the Government Performance and Results Act; (GPRA).
Medicaid Managed Care for Members with Mental Health Conditions and/or Substance Use Disorders: Strategies Used by Medicaid Managed Care Organizations to Promote Effective Information Sharing
This resource describes strategies for promote data sharing for Medicaid managed care organizations, specifically sharing physical health, mental health, and substance abuse data to provide more integrated care.
This resource provides guidance on linking education and foster care data. It provides detailed description of general issues relating to data sharing.
This resource provides information on creating linked data systems relating to early learning and development.
This resource provides an overview of the legal, ethical, scientific, and economic challenges associated with creating integrated data systems for inter-agency collaborations and research.
This slide deck provides information on legal and policy considerations and misconceptions related to early childhood integrated data systems, including lessons learned from early childhood data systems implemented in Connecticut and North Carolina.
Consumer consent options for electronic Health Information Exchange;: policy considerations and analysis
This document reviews and evaluates the potential effects of different consent models for Health Information Exchange; providing policymakers with considerations and tradeoffs for each model.
This resource provides guidance for organizations working in alternative payment models to better obtain and use data form outside organizations, and provides brief overviews of a few relevant legal issues.
This issue brief examines select communities and organizations that have made investments in health information technology and Health Information Exchange;.
This resource explains requirements for a few of the HIPAA disclosure provisions, including whether disclosures must be logged by covered entities for accounting purposes.
This website contains information about federal statistical research data centers, including information about available government data and the processes for accessing that data for research.
This online resource provides information and resources relating to contracts and MOUs to facilitate care coordination between community-based primary and behavioral health care providers.
This resource provides information and guidance associated with research involving the genetic information of tribal communities and includes links to example data use contrAct;s with Tribal and American Indian/Alaskan Native organizations.
Sharing Data for Better Results: A Guide to Building Integrated Data Systems Compatible with Federal Privacy Laws
This toolkit provides guidance on federal data protection laws to government employees and elected officials to facilitate the integration of data systems and government services.
Strength in Numbers: Supporting Quality Improvement in Early Care and Education Programs through Linking Administrative Data
This resource describes challenges in linking administrative data relating to early care and education programs and provides specific strategies to address them.
This resource provides guidance and links to other resources for researchers needing data sharing agreements to use military health information managed by the US Defense Health.
The Family Educational Rights and Privacy Act; Guidance for Reasonable Methods and Written Agreements
This guidance document provides answers to frequently asked questions regarding the FERPA protections and disclosure provisions.
This issue brief describes select federal laws relating to data protections for justice and health information and outline relevant state law issues and ethical principles for organizations to consider.
This resource provides an overview of the federal laws relating to data protections for occupational health records and provides some guidance for determining which regulations could apply in given circumstances.
This issue brief provides an overview of federal laws relating to occupational health records and gives best prAct;ice recommendations for protecting the privacy and security of occupational health records.
This resource summarizes four FERPA exceptions permitting personally identifiable information. The disclosure exceptions relate to directory information, school officials, studies and audits or evaluations.
This guidance document provides information on the FERPA protections and exceptions. It includes recommended best Practices for data sharing under the various exceptions and creating written agreements.
This document provides guidance and information on legal issues relating to using student financial aid information for program evaluation; and research.
This guide provides a detailed review of the federal HIPAA protections and special considerations associate with electronic health information.
This website provides information on state and federal laws pertaining to health information. It provides overviews of state and federal laws, analysis of important legal issues, and various legal resources.
This guidance document examines whether the HIPAA protections permit providers to submit immunization data to a Minnesota immunization registry without patient authorization.
Issue Brief: Disclosure of Identifiable Information by the Veterans Health Administration for Public Health Purposes
This issue brief examines federal laws governing the release of identifiable information by the Veterans Health Administration for public health Act;ivities.
This issue brief provides an overview of the governance structure of health information with a specific focus on the laws and regulations relating to disclosure.
This resource provides a brief overview of New York's UI Data sharing Bill (S5773A). The resource describes the new uses for unemployment insurance data permitted under the bill under NYS Labor Law Labor Law 537.
This toolkit to assist governments promote coordination and collaboration between various governmental agencies and programs relating to children and families.
This resource describes a process for negotiating data sharing agreements with local agencies with the goal of creating a neighborhood indicator system.
This resource discusses issues associated with the integration of administrative and disease surveillance data for public health applications, including real and perceived barriers to integration.
This resource provides guidance, Resource links; training modules, and legal summaries relating to privacy and confidentiality in a variety of sectors.
This toolkit outlines concepts and issues relating public health agencies' authority to collect, use, and share information for emergency preparedness and response.
This toolkit provides information, fAct; sheets, and resources relating to public health agencies' legal authority to conduct public health Act;ivities in schools, including accessing student health information.
This resource provides a summary of nearly 50 different federal laws relating to data protection in different sectors.
The Importance of Data Sharing to Support Integration of Substance Use Treatment in California's Medi-Cal Program
This issue brief analyzes two California case examples of data sharing to integrate physical health and substance abuse data, and describes how California used Medicaid waivers to integrate health care services.
The Integration of Early Childhood Data State Profiles and A Report from the U.S. Department of Health and Human Services and the U.S. Department of Education
This resource provides information relating to the creation of early childhood integrated data systems using existing administrative data to state governments.
This toolkit provides guidance, resources, and tools to help users establish an EHR-based public health surveillance system.
This resource provides guidance on creating a population health business unit for an internal employee or member-based accountability program.
This resource describes legal issues associated with sharing physical health, mental health, and substance abuse data, including a review of federal and California laws.
This toolkit contains template policies and procedures, template agreements, flow charts, and checklists designed to assist businesses and organizations in Minnesota comply with both state and federal laws.
This guidance document provides recommendations to journalists and public health information officers pertaining to the release of health information in the context of public health incidents.
This issue brief provides healthcare prAct;itioners and legal services providers with information on the legal issues associated with sharing data in medical-legal partnerships.
This US Department of Education resource provides tips on interagency data sharing and integration for education agencies, housing agencies, and organizations serving homeless persons.
This document provides guidance for creating inter-jurisdictional data sharing agreements to facilitate sharing between public health agencies in different jurisdictions.
This joint guidance from the US Departments of Labor and Education discusses compliance issues associated with linked education data with unemployment compensation data and vocational rehabilitation data.
This document describes legal and ethical for public health use of HIV data. It focuses on state laws and whether health departments can use or share HIV data for various purposes.
This resource describes the process of entering a data license agreement to use HUD data for research purposes and provides links to the data license application and other resources.
This issue brief argues for the creation of longitudinal data systems and proposes that states adopt legislation; to remove policy barriers and authorize data sharing.
This resource provides information on creating written agreements to obtain and use education data protected by IDEA Parts B and C and FERPA.
Data Sharing Road Map: Improving Student Outcomes through Partnerships between Public Housing Agencies and School Districts
This HUD resource provides guidance to assist public housing agencies collaborate and develop data-sharing partnerships with school districts.
Data-Sharing Tool Kit for Communities: How To Leverage Community Relationships While Protecting Student Privacy
This toolkit provides information and resources to help users better understand how to share data protected by FERPA.
This issue brief provides a brief overview of federal laws that encourage the use and release of health information for public health purposes.
This resource outlines legal and policy considerations for creating an integrated data system. It provides guidance for negotiating and creating legal agreements to use data.
Many Missing Pieces: The Difficult Task of Linking Early Childhood Data and School-Based Data Systems
This issue brief discusses various challenges to linking education and early childhood data. I provides a brief overview of a few federal laws protecting education and early childhood data.
This resource compiles the slides and recordings of an interdisciplinary workshop summarizing findings from a 5-year NSF Secure and Trustworthy Cyberspace Frontier Project.
Public Health Access to Student Health Data: Authorities and Limitations in Sharing Information Between Schools and Public Health Agencies
This issue brief discusses the FERPA and HIPAA data protections and exceptions relevant to data sharing between schools and public health agencies.
The resource walks through a series of legal analyses involving the application of the HIPAA rules to different case examples of health departments using health information for public health purposes.
This guidance from the Department of Education's Privacy Technical Assistance Center provides information on creating written agreements to obtain and use education data protected by FERPA.
Information Sharing in Criminal Justice & Mental Health Collaborations: Working with HIPAA and Other Privacy Laws
This resource examines the laws relating to health information sharing in the legal, public safety, and criminal justice contexts.
This resource provides an overview of legal and policy consent issues associated with interstate Health Information Exchange.
This toolkit, from the Network for Public Health Law, is intended for a broad audience of health officials, privacy officers, public health practitioners, data managers and their attorneys.