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Federal Privacy Laws - Network for Public Health Law resource

Data are essential to inform public health activities. While an abundance of data are collected and used in different sectors, laws define how data can be used to promote health of individuals and communities.

Year 2019

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Strength in Numbers: Supporting Quality Improvement in Early Care and Education Programs through Linking Administrative Data

This resource describes challenges in linking administrative data relating to early care and education programs and provides specific strategies to address them.

Year 2016

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The Privacy and Security of Non-Traditional Occupational Health Services

This resource provides an overview of the federal laws relating to data protections for occupational health records and provides some guidance for determining which regulations could apply in given circumstances.

Year 2013

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Issue Brief: Disclosure of Identifiable Information by the Veterans Health Administration for Public Health Purposes

This issue brief examines federal laws governing the release of identifiable information by the Veterans Health Administration for public health Act;ivities.

Year 2016

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Legal Issues Concerning Identifiable Health Data Sharing Between State/ Local Public Health Authorities And Tribal Epidemiology Centers In Selected U.S. Jurisdictions

This resource provides a general overview of the legal authority of state, local and tribal public health agencies to collect, use, and share data for public health and research purposes.

Year 2011

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Measuring Performance: A Guidance Document for Promise Neighborhoods on Collecting Data and Reporting Results

This resource provides a process for Promise Neighborhood grantees to establish data systems and processes to collect and report data required by the Government Performance and Results Act; (GPRA).

Year 2013

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Minnesota Statutes Governing Data Classification and Sharing

This resource summarizes key Minnesota state laws relating to data sharing.

Year 2013

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National Forum on Youth Violence Prevention: HIPAA Privacy Rule Considerations

This HHS Office for Civil Rights slide deck provides a brief overview of the HIPAA disclosure provisions.

Year 2011

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Quick Reference: HIPAA and Public Health

This resource provides a one-page overview of several HIPAA provisions as they relate to public health agencies.

Year 2013

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Registries for Evaluating Patient Outcomes: A User's Guide Third Edition

This two-volume manual provides detailed information on creating and operating various health-related registries.

Year 2014

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Tool: Checklist of Information Needed to Address Proposed Data Collection, Access and Sharing

This checklist provides a list of questions that public health authorities should consider prior to initiating new Act;ivities involving data collection, access, and sharing.

Year 2014

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Comparison of FERPA and HIPAA Privacy Rule for Accessing Student Health Data

This document provides a side-by-side comparison of the FERPA and HIPAA privacy protections to facilitate sharing between schools and health agencies.

Year 2012

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Conquering the Trials and Tribulations of Data Sharing and Linking

This slide deck provides information on legal and policy considerations and misconceptions related to early childhood integrated data systems, including lessons learned from early childhood data systems implemented in Connecticut and North Carolina.

Year 2014

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Consumer consent options for electronic Health Information Exchange;: policy considerations and analysis

This document reviews and evaluates the potential effects of different consent models for Health Information Exchange; providing policymakers with considerations and tradeoffs for each model.

Year 2010

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Criminal and Epidemiological Investigation Handbook

This resource provides guidance on joint criminal and epidemiological investigations involving law enforcement and public health officials.

Year 2011

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Disclosure of Individual Health Information & HIPAA Requirements

This resource explains requirements for a few of the HIPAA disclosure provisions, including whether disclosures must be logged by covered entities for accounting purposes.

Year 2016

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Tribal Epidemiology Toolkit

This toolkit provides resources and best Practices to promote population health among tribal communities by enhancing public health surveillance in Indian Country.

Year 2013

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Federal Statistical Research Data Centers

This website contains information about federal statistical research data centers, including information about available government data and the processes for accessing that data for research.

Year 2015

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Florida Codified Law Review Information Sharing Initiative

This resource summarizes key Florida state laws relating to data sharing.

Year 2011

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Guide to Privacy and Security of Electronic Health Information

This guide provides a detailed review of the federal HIPAA protections and special considerations associate with electronic health information.

Year 2015

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Health Information & the Law

This website provides information on state and federal laws pertaining to health information. It provides overviews of state and federal laws, analysis of important legal issues, and various legal resources.

Year 2018

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Immunization Data Sharing, HIPAA, and MIIC

This guidance document examines whether the HIPAA protections permit providers to submit immunization data to a Minnesota immunization registry without patient authorization.

Year 2016

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Summary of the HIPAA Privacy Rule

This HHS guidance provides an overview of the federal HIPAA protections and requirements.

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Administration for Children and Families (ACF) Confidentiality Toolkit

This toolkit to assist governments promote coordination and collaboration between various governmental agencies and programs relating to children and families.

Year 2014

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Administrative Data and Disease Surveillance: An Integration Toolkit

This resource discusses issues associated with the integration of administrative and disease surveillance data for public health applications, including real and perceived barriers to integration.

Year 2011

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ASTHO Public Health & Information Sharing Toolkit

This toolkit outlines concepts and issues relating public health agencies' authority to collect, use, and share information for emergency preparedness and response.

Year 2012

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ASTHO Public Health & Schools Toolkit

This toolkit provides information, fAct; sheets, and resources relating to public health agencies' legal authority to conduct public health Act;ivities in schools, including accessing student health information.

Year 2013

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Summary of Selected Federal Laws and Regulations Addressing Confidentiality, Privacy and Security

This resource provides a summary of nearly 50 different federal laws relating to data protection in different sectors.

Year 2010

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The Importance of Data Sharing to Support Integration of Substance Use Treatment in California's Medi-Cal Program

This issue brief analyzes two California case examples of data sharing to integrate physical health and substance abuse data, and describes how California used Medicaid waivers to integrate health care services.

Year 2017

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The Integration of Early Childhood Data State Profiles and A Report from the U.S. Department of Health and Human Services and the U.S. Department of Education

This resource provides information relating to the creation of early childhood integrated data systems using existing administrative data to state governments.

Year 2016

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Toolkit for Planning an EHR-based Surveillance Program: The Surveillance Information Lifecycle

This toolkit provides guidance, resources, and tools to help users establish an EHR-based public health surveillance system.

Year 2016

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Foundations in Privacy Toolkit

This toolkit contains template policies and procedures, template agreements, flow charts, and checklists designed to assist businesses and organizations in Minnesota comply with both state and federal laws.

Year 2017

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Guidance on the release of information concerning deaths, epidemics or emerging diseases

This guidance document provides recommendations to journalists and public health information officers pertaining to the release of health information in the context of public health incidents.

Year 2011

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Inter-Jurisdictional Health Information Exchange;: Guidance for Public Health Agencies

This document provides guidance for creating inter-jurisdictional data sharing agreements to facilitate sharing between public health agencies in different jurisdictions.

Year 2013

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Issue Brief: Disclosure of Certificates of Death in Indiana

This issue brief examines the legal implications of the Indiana Supreme Court Case Evansville Courier & Press and Rita Ward v.

Year 2016

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Legal & Ethical Considerations for Health Department Data Sharing

This document describes legal and ethical for public health use of HIV data. It focuses on state laws and whether health departments can use or share HIV data for various purposes.

Year 2018

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Federal Public Health Laws Supporting Data Use and Sharing

This issue brief provides a brief overview of federal laws that encourage the use and release of health information for public health purposes.

Year 2015

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Public Health Access to Student Health Data: Authorities and Limitations in Sharing Information Between Schools and Public Health Agencies

This issue brief discusses the FERPA and HIPAA data protections and exceptions relevant to data sharing between schools and public health agencies.

Year 2012

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Public Health Information and Data Sharing: The Legal Framework

These webinar slides describe the role of law in health information technology, health system outcomes, and barriers to data sharing.

Year 2016

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Using Electronic Health Data for Community Health

The resource walks through a series of legal analyses involving the application of the HIPAA rules to different case examples of health departments using health information for public health purposes.

Year 2017

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Data De-Identification Toolkit

This toolkit, from the Network for Public Health Law, is intended for a broad audience of health officials, privacy officers, public health practitioners, data managers and their attorneys.

Year 2019

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