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This resource provides information and guidance associated with research involving the genetic information of tribal communities and includes links to example data use contrAct;s with Tribal and American Indian/Alaskan Native organizations.
Strength in Numbers: Supporting Quality Improvement in Early Care and Education Programs through Linking Administrative Data
This resource describes challenges in linking administrative data relating to early care and education programs and provides specific strategies to address them.
This resource provides guidance and links to other resources for researchers needing data sharing agreements to use military health information managed by the US Defense Health.
Issue Brief: Disclosure of Identifiable Information by the Veterans Health Administration for Public Health Purposes
This issue brief examines federal laws governing the release of identifiable information by the Veterans Health Administration for public health Act;ivities.
This issue brief provides an overview of the governance structure of health information with a specific focus on the laws and regulations relating to disclosure.
This online resource provides a brief overview of the importance of data use agreements and contrAct;s in obtaining and using administrative data, and it contains links to sector-specific resources and example agreements.
Legal Issues Concerning Identifiable Health Data Sharing Between State/ Local Public Health Authorities And Tribal Epidemiology Centers In Selected U.S. Jurisdictions
This resource provides a general overview of the legal authority of state, local and tribal public health agencies to collect, use, and share data for public health and research purposes.
Measuring Performance: A Guidance Document for Promise Neighborhoods on Collecting Data and Reporting Results
This resource provides a process for Promise Neighborhood grantees to establish data systems and processes to collect and report data required by the Government Performance and Results Act; (GPRA).
This resource provides an overview of the legal, ethical, scientific, and economic challenges associated with creating integrated data systems for inter-agency collaborations and research.
This slide deck provides information on legal and policy considerations and misconceptions related to early childhood integrated data systems, including lessons learned from early childhood data systems implemented in Connecticut and North Carolina.
This resource provides a brief overview of New York's UI Data sharing Bill (S5773A). The resource describes the new uses for unemployment insurance data permitted under the bill under NYS Labor Law Labor Law 537.
This website contains information about federal statistical research data centers, including information about available government data and the processes for accessing that data for research.
This resource discusses issues associated with the integration of administrative and disease surveillance data for public health applications, including real and perceived barriers to integration.
This resource provides guidance, Resource links; training modules, and legal summaries relating to privacy and confidentiality in a variety of sectors.
This resource provides a summary of nearly 50 different federal laws relating to data protection in different sectors.
This resource outlines legal and policy considerations for creating an integrated data system. It provides guidance for negotiating and creating legal agreements to use data.
Many Missing Pieces: The Difficult Task of Linking Early Childhood Data and School-Based Data Systems
This issue brief discusses various challenges to linking education and early childhood data. I provides a brief overview of a few federal laws protecting education and early childhood data.
This resource compiles the slides and recordings of an interdisciplinary workshop summarizing findings from a 5-year NSF Secure and Trustworthy Cyberspace Frontier Project.