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A Legal Guide to Privacy and Security

This resource provides an overview of several federal data protection laws relating to different sectors and select state law frameworks.

Year 2017

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Legal Agreements & Supporting Documents

This online resource provides a brief overview of the importance of data use agreements and contrAct;s in obtaining and using administrative data, and it contains links to sector-specific resources and example agreements.

Year 2016

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Legal Issues Concerning Identifiable Health Data Sharing Between State/ Local Public Health Authorities And Tribal Epidemiology Centers In Selected U.S. Jurisdictions

This resource provides a general overview of the legal authority of state, local and tribal public health agencies to collect, use, and share data for public health and research purposes.

Year 2011

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Measuring Performance: A Guidance Document for Promise Neighborhoods on Collecting Data and Reporting Results

This resource provides a process for Promise Neighborhood grantees to establish data systems and processes to collect and report data required by the Government Performance and Results Act; (GPRA).

Year 2013

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Minnesota Statutes Governing Data Classification and Sharing

This resource summarizes key Minnesota state laws relating to data sharing.

Year 2013

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Connecting the Dots: The Promise of Integrated Data Systems for Policy Analysis and Systems Reform

This resource provides an overview of the legal, ethical, scientific, and economic challenges associated with creating integrated data systems for inter-agency collaborations and research.

Year 2010

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Conquering the Trials and Tribulations of Data Sharing and Linking

This slide deck provides information on legal and policy considerations and misconceptions related to early childhood integrated data systems, including lessons learned from early childhood data systems implemented in Connecticut and North Carolina.

Year 2014

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Federal Statistical Research Data Centers

This website contains information about federal statistical research data centers, including information about available government data and the processes for accessing that data for research.

Year 2015

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Sharing Data and Protecting Your Community

This resource provides information and guidance associated with research involving the genetic information of tribal communities and includes links to example data use contrAct;s with Tribal and American Indian/Alaskan Native organizations.

Year 2011

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Strength in Numbers: Supporting Quality Improvement in Early Care and Education Programs through Linking Administrative Data

This resource describes challenges in linking administrative data relating to early care and education programs and provides specific strategies to address them.

Year 2016

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Submit a Data Sharing Application

This resource provides guidance and links to other resources for researchers needing data sharing agreements to use military health information managed by the US Defense Health.

Year 2015

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Tribal Epidemiology Toolkit

This toolkit provides resources and best Practices to promote population health among tribal communities by enhancing public health surveillance in Indian Country.

Year 2013

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Issue Brief: Disclosure of Identifiable Information by the Veterans Health Administration for Public Health Purposes

This issue brief examines federal laws governing the release of identifiable information by the Veterans Health Administration for public health Act;ivities.

Year 2016

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Laws and Regulations Governing the Disclosure of Health Information (2014 update)

This issue brief provides an overview of the governance structure of health information with a specific focus on the laws and regulations relating to disclosure.

Year 2014

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Unemployment Insurance (UI) Data Sharing

This resource provides a brief overview of New York's UI Data sharing Bill (S5773A). The resource describes the new uses for unemployment insurance data permitted under the bill under NYS Labor Law Labor Law 537.

Year 2013

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New York State Privacy & Confidentiality Toolkit

This toolkit provides resources for government agencies to share information and facilitate the creation of a Child Health Passport.

Year 2014

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Summary of the HIPAA Privacy Rule

This HHS guidance provides an overview of the federal HIPAA protections and requirements.

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Open Government Guide

This resource contains information on state open records laws (sometimes known as freedom of information laws or sunshine laws).

Year 2011

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Administrative Data and Disease Surveillance: An Integration Toolkit

This resource discusses issues associated with the integration of administrative and disease surveillance data for public health applications, including real and perceived barriers to integration.

Year 2011

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American Statistical Association Committee on Privacy and Confidentiality

This resource provides guidance, Resource links; training modules, and legal summaries relating to privacy and confidentiality in a variety of sectors.

Year 2011

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SLDS Issue Brief: Sources and Linking Strategies for Employment Data

This issue brief describes different strategies for linking employment data, education data, and other social service data.

Year 2016

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Summary of Selected Federal Laws and Regulations Addressing Confidentiality, Privacy and Security

This resource provides a summary of nearly 50 different federal laws relating to data protection in different sectors.

Year 2010

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Legal Issues for IDS Use: Finding a Way Forward

This resource outlines legal and policy considerations for creating an integrated data system. It provides guidance for negotiating and creating legal agreements to use data.

Year 2017

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Many Missing Pieces: The Difficult Task of Linking Early Childhood Data and School-Based Data Systems

This issue brief discusses various challenges to linking education and early childhood data. I provides a brief overview of a few federal laws protecting education and early childhood data.

Year 2010

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Nebraska Codified Law Review Information Sharing Initiative

This resource summarizes key Nebraska state laws relating to data sharing.

Year 2010

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Privacy Tools for Data Sharing: Lessons Learned and Directions Forward

This resource compiles the slides and recordings of an interdisciplinary workshop summarizing findings from a 5-year NSF Secure and Trustworthy Cyberspace Frontier Project.

Year 2017

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Public Health Information and Data Sharing: The Legal Framework

These webinar slides describe the role of law in health information technology, health system outcomes, and barriers to data sharing.

Year 2016

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Using Administrative Data for Randomized Evaluations

This resource provides guidance on obtaining and using nonpublic administrative data for evaluation purposes.

Year 2015

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