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Measuring Performance: A Guidance Document for Promise Neighborhoods on Collecting Data and Reporting Results
This resource provides a process for Promise Neighborhood grantees to establish data systems and processes to collect and report data required by the Government Performance and Results Act; (GPRA).
This resource for clinicians and clinical laboratories contains information and sample broad consent agreements (in several languages) for using identifiable genetic and health information in future research.
This slide deck provides an overview of legal issues associated with cloud computing and provides considerations for negotiating contrAct; terms with cloud computing providers.
This resource provides an overview of the legal, ethical, scientific, and economic challenges associated with creating integrated data systems for inter-agency collaborations and research.
This issue brief provides an overview of the governance structure of health information with a specific focus on the laws and regulations relating to disclosure.
Legal Issues Concerning Identifiable Health Data Sharing Between State/ Local Public Health Authorities And Tribal Epidemiology Centers In Selected U.S. Jurisdictions
This resource provides a general overview of the legal authority of state, local and tribal public health agencies to collect, use, and share data for public health and research purposes.
This website provides information on state and federal laws pertaining to health information. It provides overviews of state and federal laws, analysis of important legal issues, and various legal resources.
Consumer consent options for electronic Health Information Exchange;: policy considerations and analysis
This document reviews and evaluates the potential effects of different consent models for Health Information Exchange; providing policymakers with considerations and tradeoffs for each model.
This resource provides information and guidance associated with research involving the genetic information of tribal communities and includes links to example data use contrAct;s with Tribal and American Indian/Alaskan Native organizations.
This resource provides guidance and links to other resources for researchers needing data sharing agreements to use military health information managed by the US Defense Health.
This resource compiles the slides and recordings of an interdisciplinary workshop summarizing findings from a 5-year NSF Secure and Trustworthy Cyberspace Frontier Project.
This resource describes the process of entering a data license agreement to use HUD data for research purposes and provides links to the data license application and other resources.
This issue brief argues for the creation of longitudinal data systems and proposes that states adopt legislation; to remove policy barriers and authorize data sharing.
This resource provides guidance, Resource links; training modules, and legal summaries relating to privacy and confidentiality in a variety of sectors.
This document describes legal and ethical for public health use of HIV data. It focuses on state laws and whether health departments can use or share HIV data for various purposes.
Data-Sharing Tool Kit for Communities: How To Leverage Community Relationships While Protecting Student Privacy
This toolkit provides information and resources to help users better understand how to share data protected by FERPA.
This toolkit contains template policies and procedures, template agreements, flow charts, and checklists designed to assist businesses and organizations in Minnesota comply with both state and federal laws.
This resource provides a summary of nearly 50 different federal laws relating to data protection in different sectors.