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Legal Agreements & Supporting Documents

This online resource provides a brief overview of the importance of data use agreements and contrAct;s in obtaining and using administrative data, and it contains links to sector-specific resources and example agreements.

Year 2016

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Registries for Evaluating Patient Outcomes: A User's Guide Third Edition

This two-volume manual provides detailed information on creating and operating various health-related registries.

Year 2014

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Connecting the Dots: The Promise of Integrated Data Systems for Policy Analysis and Systems Reform

This resource provides an overview of the legal, ethical, scientific, and economic challenges associated with creating integrated data systems for inter-agency collaborations and research.

Year 2010

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Guidance on the Use of Financial Aid Information for program evaluation; and Research

This document provides guidance and information on legal issues relating to using student financial aid information for program evaluation; and research.

Year 2017

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Health Information & the Law

This website provides information on state and federal laws pertaining to health information. It provides overviews of state and federal laws, analysis of important legal issues, and various legal resources.

Year 2018

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Issue Brief: Disclosure of Identifiable Information by the Veterans Health Administration for Public Health Purposes

This issue brief examines federal laws governing the release of identifiable information by the Veterans Health Administration for public health Act;ivities.

Year 2016

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Laws and Regulations Governing the Disclosure of Health Information (2014 update)

This issue brief provides an overview of the governance structure of health information with a specific focus on the laws and regulations relating to disclosure.

Year 2014

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Administration for Children and Families (ACF) Confidentiality Toolkit

This toolkit to assist governments promote coordination and collaboration between various governmental agencies and programs relating to children and families.

Year 2014

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American Statistical Association Committee on Privacy and Confidentiality

This resource provides guidance, Resource links; training modules, and legal summaries relating to privacy and confidentiality in a variety of sectors.

Year 2011

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Summary of Selected Federal Laws and Regulations Addressing Confidentiality, Privacy and Security

This resource provides a summary of nearly 50 different federal laws relating to data protection in different sectors.

Year 2010

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Data protection in the United States: overview by Ieuan Jolly, Loeb & Loeb

This Q&A-format resource provides an overview of a variety of federal data protection laws.

Year 2017

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Legal Issues for IDS Use: Finding a Way Forward

This resource outlines legal and policy considerations for creating an integrated data system. It provides guidance for negotiating and creating legal agreements to use data.

Year 2017

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