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Measuring Performance: A Guidance Document for Promise Neighborhoods on Collecting Data and Reporting Results
This resource provides a process for Promise Neighborhood grantees to establish data systems and processes to collect and report data required by the Government Performance and Results Act; (GPRA).
Year 2013
New York State Privacy & Confidentiality Toolkit
This toolkit provides resources for government agencies to share information and facilitate the creation of a Child Health Passport.
Year 2014
Business Associate ContrAct;s
This HHS guidance provides a template for a HIPAA business associate agreement.
Year 2013
Clark County Information Sharing Guide
This resource provides guidance relating to Inter-Agency data sharing; for juvenile justice reform in Washington state.
Year 2012
Cloud Computing: A Primer on Legal Issues, Including Privacy and Data Security Concerns
This slide deck provides an overview of legal issues associated with cloud computing and provides considerations for negotiating contrAct; terms with cloud computing providers.
Year 2010
Connecting the Dots: The Promise of Integrated Data Systems for Policy Analysis and Systems Reform
This resource provides an overview of the legal, ethical, scientific, and economic challenges associated with creating integrated data systems for inter-agency collaborations and research.
Year 2010
Legal Agreements & Supporting Documents
This online resource provides a brief overview of the importance of data use agreements and contrAct;s in obtaining and using administrative data, and it contains links to sector-specific resources and example agreements.
Year 2016
Legal Issues Concerning Identifiable Health Data Sharing Between State/ Local Public Health Authorities And Tribal Epidemiology Centers In Selected U.S. Jurisdictions
This resource provides a general overview of the legal authority of state, local and tribal public health agencies to collect, use, and share data for public health and research purposes.
Year 2011
Legal Issues Related to Sharing of Clinical health; Data with Public Health Agencies
This document discusses legal issues relating data sharing between health care providers and public health agencies.
Year 2016
Administration for Children and Families (ACF) Confidentiality Toolkit
This toolkit to assist governments promote coordination and collaboration between various governmental agencies and programs relating to children and families.
Year 2014
Data Sharing Requirements Initiative: Collaborative Approaches to Advance Data Sharing
This resource provides guidance for organizations working in alternative payment models to better obtain and use data form outside organizations, and provides brief overviews of a few relevant legal issues.
Year 2017
Data Sharing to Enable Clinical Transformation at the Community Level: IT Takes a Village
This issue brief examines select communities and organizations that have made investments in health information technology and Health Information Exchange;.
Year 2014
Data Sharing: Creating Agreements In support of community-academic partnerships
This resource provides guidelines and best Practices for data sharing between academia and community organizations.
Year 2012
Developing Data Sharing Agreements
This resource provides information and links relating to data sharing agreements pertaining to education data and student records.
Year 2016
Federal Statistical Research Data Centers
This website contains information about federal statistical research data centers, including information about available government data and the processes for accessing that data for research.
Year 2015
Guidance for Reasonable Methods and Written Agreements
This guidance document provides information on the FERPA protections and exceptions. It includes recommended best Practices for data sharing under the various exceptions and creating written agreements.
Year 2015
Rising to the Challenge: Building Effective Systems for Young Children and Families, a BUILD E-Book
This resource provides information on creating linked data systems relating to early learning and development.
Year 2015
Criminal and Epidemiological Investigation Handbook
This resource provides guidance on joint criminal and epidemiological investigations involving law enforcement and public health officials.
Year 2011
Data De-identification: An Overview of Basic Terms
This resource provides an overview of key concepts relating to data de-identification as it pertains to FERPA.
Year 2012
Roadmap for Foster Care and K/12 Data Linkages Key Focus Areas to Ensure Quality Implementation
This resource provides guidance on linking education and foster care data. It provides detailed description of general issues relating to data sharing.
Year 2017
SAMHSA - HRSA Center for Integrated Health Solutions
This online resource provides information and resources relating to contracts and MOUs to facilitate care coordination between community-based primary and behavioral health care providers.
Year 2011
Sharing Data and Protecting Your Community
This resource provides information and guidance associated with research involving the genetic information of tribal communities and includes links to example data use contrAct;s with Tribal and American Indian/Alaskan Native organizations.
Year 2011
Sharing Data for Better Results: A Guide to Building Integrated Data Systems Compatible with Federal Privacy Laws
This toolkit provides guidance on federal data protection laws to government employees and elected officials to facilitate the integration of data systems and government services.
Year 2014
Strength in Numbers: Supporting Quality Improvement in Early Care and Education Programs through Linking Administrative Data
This resource describes challenges in linking administrative data relating to early care and education programs and provides specific strategies to address them.
Year 2016
Submit a Data Sharing Application
This resource provides guidance and links to other resources for researchers needing data sharing agreements to use military health information managed by the US Defense Health.
Year 2015
The Family Educational Rights and Privacy Act; Guidance for Reasonable Methods and Written Agreements
This guidance document provides answers to frequently asked questions regarding the FERPA protections and disclosure provisions.
Year 2012
The Legal Landscape of Justice and Health Information Sharing
This issue brief describes select federal laws relating to data protections for justice and health information and outline relevant state law issues and ethical principles for organizations to consider.
Year 2013
Tribal Epidemiology Toolkit
This toolkit provides resources and best Practices to promote population health among tribal communities by enhancing public health surveillance in Indian Country.
Year 2013
Unemployment Insurance (UI) Data Sharing
This resource provides a brief overview of New York's UI Data sharing Bill (S5773A). The resource describes the new uses for unemployment insurance data permitted under the bill under NYS Labor Law Labor Law 537.
Year 2013
Privacy Tools for Data Sharing: Lessons Learned and Directions Forward
This resource compiles the slides and recordings of an interdisciplinary workshop summarizing findings from a 5-year NSF Secure and Trustworthy Cyberspace Frontier Project.
Year 2017
Public Health Access to Student Health Data: Authorities and Limitations in Sharing Information Between Schools and Public Health Agencies
This issue brief discusses the FERPA and HIPAA data protections and exceptions relevant to data sharing between schools and public health agencies.
Year 2012
INFORMATION SharingIN CRIMINAL JUSTICE& MENTAL HEALTH COLLABORATIONS: Working with HIPAA and Other Privacy Laws
This resource examines the laws relating to health information sharing in the legal, public safety, and criminal justice contexts.
Year 2010
Inter-Jurisdictional Health Information Exchange;: Guidance for Public Health Agencies
This document provides guidance for creating inter-jurisdictional data sharing agreements to facilitate sharing between public health agencies in different jurisdictions.
Year 2013
Data License Agreement
This resource describes the process of entering a data license agreement to use HUD data for research purposes and provides links to the data license application and other resources.
Year 2017
Data Sharing Agreement Checklist for IDEA Part C and Part B 619 Agencies and Programs
This resource provides information on creating written agreements to obtain and use education data protected by IDEA Parts B and C and FERPA.
Year 2014
American Statistical Association Committee on Privacy and Confidentiality
This resource provides guidance, Resource links; training modules, and legal summaries relating to privacy and confidentiality in a variety of sectors.
Year 2011
Models for Change Information Sharing Tool Kit
This toolkit provides information for jurisdictions seeking to share data to support juvenile justice reform efforts.
Year 2015
National Neighborhood Indicators Partnership Lessons on Local Data Sharing
This resource describes a process for negotiating data sharing agreements with local agencies with the goal of creating a neighborhood indicator system.
Year 2016
Joint Guidance on Data Matching to Facilitate WIOA Performance Reporting and Evaluation
This joint guidance from the US Departments of Labor and Education discusses compliance issues associated with linked education data with unemployment compensation data and vocational rehabilitation data.
Year 2016
Legal Issues for IDS Use: Finding a Way Forward
This resource outlines legal and policy considerations for creating an integrated data system. It provides guidance for negotiating and creating legal agreements to use data.
Year 2017
Data Sharing Road Map: Improving Student Outcomes through Partnerships between Public Housing Agencies and School Districts
This HUD resource provides guidance to assist public housing agencies collaborate and develop data-sharing partnerships with school districts.
Year 2017
Data-Sharing Tool Kit for Communities: How To Leverage Community Relationships While Protecting Student Privacy
This toolkit provides information and resources to help users better understand how to share data protected by FERPA.
Year 2016
Sharing data: legal and policy considerations
This resource provides best Practices concerning the legal and policy considerations pertaining to sharing research data.
Year 2012
SLDS Issue Brief: Sources and Linking Strategies for Employment Data
This issue brief describes different strategies for linking employment data, education data, and other social service data.
Year 2016
Foundations in Privacy Toolkit
This toolkit contains template policies and procedures, template agreements, flow charts, and checklists designed to assist businesses and organizations in Minnesota comply with both state and federal laws.
Year 2017
Fine Print: Rules for Exchanging Behavioral Health Information in California
This resource describes legal issues associated with sharing physical health, mental health, and substance abuse data, including a review of federal and California laws.
Year 2014
The Integration of Early Childhood Data State Profiles and A Report from the U.S. Department of Health and Human Services and the U.S. Department of Education
This resource provides information relating to the creation of early childhood integrated data systems using existing administrative data to state governments.
Year 2016
Toolkit for Communities Using Health Data
This report by the National Committee on Vital Statistics describes the principles for data governance and stewardship.
Year 2015
Top 10 Steps to Take Before Launching a Population Health Management Program
This resource provides guidance on creating a population health business unit for an internal employee or member-based accountability program.
Year 2014
Using Administrative Data for Randomized Evaluations
This resource provides guidance on obtaining and using nonpublic administrative data for evaluation purposes.
Year 2015
Written Agreement Checklist
This guidance from the Department of Education's Privacy Technical Assistance Center provides information on creating written agreements to obtain and use education data protected by FERPA.
Year 2015
ASTHO Public Health & Information Sharing Toolkit
This toolkit outlines concepts and issues relating public health agencies' authority to collect, use, and share information for emergency preparedness and response.
Year 2012