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Measuring Performance: A Guidance Document for Promise Neighborhoods on Collecting Data and Reporting Results

This resource provides a process for Promise Neighborhood grantees to establish data systems and processes to collect and report data required by the Government Performance and Results Act; (GPRA).

Year 2013

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New York State Privacy & Confidentiality Toolkit

This toolkit provides resources for government agencies to share information and facilitate the creation of a Child Health Passport.

Year 2014

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Clark County Information Sharing Guide

This resource provides guidance relating to Inter-Agency data sharing; for juvenile justice reform in Washington state.

Year 2012

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Comparison of FERPA and HIPAA Privacy Rule for Accessing Student Health Data

This document provides a side-by-side comparison of the FERPA and HIPAA privacy protections to facilitate sharing between schools and health agencies.

Year 2012

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Connecting the Dots: The Promise of Integrated Data Systems for Policy Analysis and Systems Reform

This resource provides an overview of the legal, ethical, scientific, and economic challenges associated with creating integrated data systems for inter-agency collaborations and research.

Year 2010

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Conquering the Trials and Tribulations of Data Sharing and Linking

This slide deck provides information on legal and policy considerations and misconceptions related to early childhood integrated data systems, including lessons learned from early childhood data systems implemented in Connecticut and North Carolina.

Year 2014

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Legal Issues Concerning Identifiable Health Data Sharing Between State/ Local Public Health Authorities And Tribal Epidemiology Centers In Selected U.S. Jurisdictions

This resource provides a general overview of the legal authority of state, local and tribal public health agencies to collect, use, and share data for public health and research purposes.

Year 2011

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Administration for Children and Families (ACF) Confidentiality Toolkit

This toolkit to assist governments promote coordination and collaboration between various governmental agencies and programs relating to children and families.

Year 2014

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Registries for Evaluating Patient Outcomes: A User's Guide Third Edition

This two-volume manual provides detailed information on creating and operating various health-related registries.

Year 2014

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Rising to the Challenge: Building Effective Systems for Young Children and Families, a BUILD E-Book

This resource provides information on creating linked data systems relating to early learning and development.

Year 2015

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Criminal and Epidemiological Investigation Handbook

This resource provides guidance on joint criminal and epidemiological investigations involving law enforcement and public health officials.

Year 2011

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Roadmap for Foster Care and K/12 Data Linkages Key Focus Areas to Ensure Quality Implementation

This resource provides guidance on linking education and foster care data. It provides detailed description of general issues relating to data sharing.

Year 2017

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Sharing Data for Better Results: A Guide to Building Integrated Data Systems Compatible with Federal Privacy Laws

This toolkit provides guidance on federal data protection laws to government employees and elected officials to facilitate the integration of data systems and government services.

Year 2014

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Strength in Numbers: Supporting Quality Improvement in Early Care and Education Programs through Linking Administrative Data

This resource describes challenges in linking administrative data relating to early care and education programs and provides specific strategies to address them.

Year 2016

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Tribal Epidemiology Toolkit

This toolkit provides resources and best Practices to promote population health among tribal communities by enhancing public health surveillance in Indian Country.

Year 2013

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Unemployment Insurance (UI) Data Sharing

This resource provides a brief overview of New York's UI Data sharing Bill (S5773A). The resource describes the new uses for unemployment insurance data permitted under the bill under NYS Labor Law Labor Law 537.

Year 2013

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Public Health Access to Student Health Data: Authorities and Limitations in Sharing Information Between Schools and Public Health Agencies

This issue brief discusses the FERPA and HIPAA data protections and exceptions relevant to data sharing between schools and public health agencies.

Year 2012

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INFORMATION SharingIN CRIMINAL JUSTICE& MENTAL HEALTH COLLABORATIONS: Working with HIPAA and Other Privacy Laws

This resource examines the laws relating to health information sharing in the legal, public safety, and criminal justice contexts.

Year 2010

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Integrated Data Systems and Student Privacy

This resource describes FERPA compliance issues associated with the creation and operation of integrated data systems involving education data.

Year 2017

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Interagency Data Disclosure

This US Department of Education resource provides tips on interagency data sharing and integration for education agencies, housing agencies, and organizations serving homeless persons.

Year 2015

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Inter-Jurisdictional Health Information Exchange;: Guidance for Public Health Agencies

This document provides guidance for creating inter-jurisdictional data sharing agreements to facilitate sharing between public health agencies in different jurisdictions.

Year 2013

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Data Policy Toolkit: Implementing the State Blueprint

This issue brief argues for the creation of longitudinal data systems and proposes that states adopt legislation; to remove policy barriers and authorize data sharing.

Year 2016

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ASTHO Public Health & Schools Toolkit

This toolkit provides information, fAct; sheets, and resources relating to public health agencies' legal authority to conduct public health Act;ivities in schools, including accessing student health information.

Year 2013

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Many Missing Pieces: The Difficult Task of Linking Early Childhood Data and School-Based Data Systems

This issue brief discusses various challenges to linking education and early childhood data. I provides a brief overview of a few federal laws protecting education and early childhood data.

Year 2010

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Models for Change Information Sharing Tool Kit

This toolkit provides information for jurisdictions seeking to share data to support juvenile justice reform efforts.

Year 2015

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Joint Guidance on Data Matching to Facilitate WIOA Performance Reporting and Evaluation

This joint guidance from the US Departments of Labor and Education discusses compliance issues associated with linked education data with unemployment compensation data and vocational rehabilitation data.

Year 2016

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Legal & Ethical Considerations for Health Department Data Sharing

This document describes legal and ethical for public health use of HIV data. It focuses on state laws and whether health departments can use or share HIV data for various purposes.

Year 2018

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Legal Issues for IDS Use: Finding a Way Forward

This resource outlines legal and policy considerations for creating an integrated data system. It provides guidance for negotiating and creating legal agreements to use data.

Year 2017

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Data Sharing Between Law Enforcement and Schools

This resource provides answers to frequently asked questions relating to data sharing between education and law enforcement.

Year 2017

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Data Sharing Road Map: Improving Student Outcomes through Partnerships between Public Housing Agencies and School Districts

This HUD resource provides guidance to assist public housing agencies collaborate and develop data-sharing partnerships with school districts.

Year 2017

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Data-Sharing Tool Kit for Communities: How To Leverage Community Relationships While Protecting Student Privacy

This toolkit provides information and resources to help users better understand how to share data protected by FERPA.

Year 2016

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SLDS Issue Brief: Sources and Linking Strategies for Employment Data

This issue brief describes different strategies for linking employment data, education data, and other social service data.

Year 2016

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Fine Print: Rules for Exchanging Behavioral Health Information in California

This resource describes legal issues associated with sharing physical health, mental health, and substance abuse data, including a review of federal and California laws.

Year 2014

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The Importance of Data Sharing to Support Integration of Substance Use Treatment in California's Medi-Cal Program

This issue brief analyzes two California case examples of data sharing to integrate physical health and substance abuse data, and describes how California used Medicaid waivers to integrate health care services.

Year 2017

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The Integration of Early Childhood Data State Profiles and A Report from the U.S. Department of Health and Human Services and the U.S. Department of Education

This resource provides information relating to the creation of early childhood integrated data systems using existing administrative data to state governments.

Year 2016

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Toolkit for Communities Using Health Data

This report by the National Committee on Vital Statistics describes the principles for data governance and stewardship.

Year 2015

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ASTHO Public Health & Information Sharing Toolkit

This toolkit outlines concepts and issues relating public health agencies' authority to collect, use, and share information for emergency preparedness and response.

Year 2012

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