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Make open data Sharing a no-brainer for ethics committees

This resource is an online repository for consent forms that have been used in IRB-approved research, with a focus on neuroimaging research.

Year 2018

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Measuring Performance: A Guidance Document for Promise Neighborhoods on Collecting Data and Reporting Results

This resource provides a process for Promise Neighborhood grantees to establish data systems and processes to collect and report data required by the Government Performance and Results Act; (GPRA).

Year 2013

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Medicaid Managed Care for Members with Mental Health Conditions and/or Substance Use Disorders: Strategies Used by Medicaid Managed Care Organizations to Promote Effective Information Sharing

This resource describes strategies for promote data sharing for Medicaid managed care organizations, specifically sharing physical health, mental health, and substance abuse data to provide more integrated care.

Year 2016

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Registries for Evaluating Patient Outcomes: A User's Guide Third Edition

This two-volume manual provides detailed information on creating and operating various health-related registries.

Year 2014

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Behavioral Health Data Sharing Toolkit

This online toolkit provides information on sharing behavioral health information under California and federal laws with the goal of assisting the integration of behavioral and physical health information for more comprehensive patient care.

Year 2017

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Clinical Broad Data Sharing Consent Resources

This resource for clinicians and clinical laboratories contains information and sample broad consent agreements (in several languages) for using identifiable genetic and health information in future research.

Year 2017

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Clark County Information Sharing Guide

This resource provides guidance relating to Inter-Agency data sharing; for juvenile justice reform in Washington state.

Year 2012

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Consumer consent options for electronic Health Information Exchange;: policy considerations and analysis

This document reviews and evaluates the potential effects of different consent models for Health Information Exchange; providing policymakers with considerations and tradeoffs for each model.

Year 2010

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Data Sharing to Enable Clinical Transformation at the Community Level: IT Takes a Village

This issue brief examines select communities and organizations that have made investments in health information technology and Health Information Exchange;.

Year 2014

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New York State Privacy & Confidentiality Toolkit

This toolkit provides resources for government agencies to share information and facilitate the creation of a Child Health Passport.

Year 2014

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Immunization Data Sharing, HIPAA, and MIIC

This guidance document examines whether the HIPAA protections permit providers to submit immunization data to a Minnesota immunization registry without patient authorization.

Year 2016

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Recommended Informed Consent Language for Data Sharing

This resource provides general information and recommendations relating to informed consent documents for researchers.

Year 2014

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Toolkit for Communities Using Health Data

This report by the National Committee on Vital Statistics describes the principles for data governance and stewardship.

Year 2015

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Joint Guidance on Data Matching to Facilitate WIOA Performance Reporting and Evaluation

This joint guidance from the US Departments of Labor and Education discusses compliance issues associated with linked education data with unemployment compensation data and vocational rehabilitation data.

Year 2016

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Public Health Access to Student Health Data: Authorities and Limitations in Sharing Information Between Schools and Public Health Agencies

This issue brief discusses the FERPA and HIPAA data protections and exceptions relevant to data sharing between schools and public health agencies.

Year 2012

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Foundations in Privacy Toolkit

This toolkit contains template policies and procedures, template agreements, flow charts, and checklists designed to assist businesses and organizations in Minnesota comply with both state and federal laws.

Year 2017

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Information Sharing in Medical-Legal Partnerships: Foundational Concepts and Resources

This issue brief provides healthcare prAct;itioners and legal services providers with information on the legal issues associated with sharing data in medical-legal partnerships.

Year 2017

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INFORMATION SharingIN CRIMINAL JUSTICE& MENTAL HEALTH COLLABORATIONS: Working with HIPAA and Other Privacy Laws

This resource examines the laws relating to health information sharing in the legal, public safety, and criminal justice contexts.

Year 2010

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Data-Sharing Tool Kit for Communities: How To Leverage Community Relationships While Protecting Student Privacy

This toolkit provides information and resources to help users better understand how to share data protected by FERPA.

Year 2016

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Using Administrative Data for Randomized Evaluations

This resource provides guidance on obtaining and using nonpublic administrative data for evaluation purposes.

Year 2015

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State and Federal Consent Laws Affecting Interstate Health Information Exchange;

This resource provides an overview of legal and policy consent issues associated with interstate Health Information Exchange;.

Year 2011

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